POTS awareness day
It’s POTS awareness day so I wanna remind everyone that 1. We recently did an episode of the podcast talking about how my mysterious /Long Covid/ diagnosis was finally revealed to be POTS
- here’s the podcast and its transcription, but it’s also here if you want on youtubeeee
but if you don’t wanna listen to the whole potscast, the quick version is that POTS stands for postural orthostatic tachycardia syndrome. It is most known for a rise in the heart rate by 30 plus beats per minute. That quickening of the heart rate is a sign of a fucked up nervous system, but it’s just the tip of the iceberg. There are loads of annoying symptoms. Fatigue, fainting, brain fog, dizziness, breathlessness, bad sleep, nausea, pain, shaking. It goes on. The symptoms get worse in the heat, during prolonged periods of standing, during periods full stop, and I get very quickly ill if I don’t chug water all day long and have bonus salt, and that’s because POTS leaves the patient with a lower blood volume than normal people n I have to top myself upppp. I was speaking to a friend about this at the weekend and he said POTS must be like the feeling after you donate blood, except every day, all the time. And yeah. Pretty much.
I feel the need to bang the drum about it because I was Very Sick for a year, my GP didn’t know what POTS was, the people in the hospital didn’t identify it, and I wishhhhhhh they had because it would have saved me a lot of suffering. I am now on beta blockers and trying to manage my symptoms but it’s literally still a part-time job. I will say that the change in season looks good on me; I am doing much better than I have done for a few months because it’s cold now, and I’m very happy about that!
Covid is giving a lot of people this condition and since talking about it on The White Pube I know of at least 2 people who have got a POTS diagnosis off the back of me raising awareness so I gotta carry on 👽
For any POTS people, here’s a gift: